As a Fabry disease support organization with limited resources, the NFDF's assistance program is currently limited to non-monetary forms of assistance and support with a few exceptions.

 

As we learn from individuals with Fabry disease and their families, healthcare providers and advocates, support organizations and others about the needs of the Fabry community, we hope to address as many of those needs as possible.

Please contact the NFDF if you need information, family tree assistance, help educating your physician or family members, help researching information about Fabry disease issues, referrals for issues we cannot support ourselves, or any other need you think we may be able to support.  

 

As the NFDF emerges as a major Fabry disease support organization, we hope to offer expanded forms of assistance.  

To help the NFDF learn more about the Fabry community and about the actual needs of individuals,  please become a member of the National Fabry Disease Foundation, participate in our information gathering surveys, send us your stories, ask questions, provide suggestions and comments about the website, and let us know about any issues you have relating to your experience with Fabry disease including its management and treatment. 

Collectively, by working together, the Fabry community has a tremendous ability to increase disease education and awareness and to provide information that helps us to better understand our disease and its effects.       

Thank You!

See How to Help for more information.