The National Fabry Disease Foundation (NFDF)

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Fabry Disease Advocacy

The NFDF's advocacy efforts will primarily involve collaboration with other organizations to accomplish the following and other related activities:

Champion Fabry education and awareness
Lobby for beneficial activities and actions
Advocate for patient's rights
Network and collaborate with others
Encourage other advocates and spokespersons
Provide recognition
Take action

The following advocacy organization links will open in a separate website windows.

Genetic Alliance is a forerunner in genetic disease public policy and advocacy partnering programs. Participate in Genetic Alliance list-serves that keep you informed about important genetic disease issues and how you can help.

National Organization for Rare Disorders provides important information on rare disease advocacy and partnering efforts that support the Fabry community.

The Web Site has moved to a new address - www.fabrydisease.org